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(04-29) 06:05 PDT (AP) --
It's called the "terrible choice." A terminally
ill patient can keep
fighting a disease, often at enormous expense -- or get low-cost
hospice
care and accept death.
Now, in a move that could make the choice less
wrenching, Aetna Inc.
is expected to announce a new program Thursday that will cover hospice
care while simultaneously paying for aggressive -- and expensive --
treatments
that aim to cure the disease. Aetna, the country's third-largest
insurance
company, and Kaiser Permanente are the only two major insurers to offer
this kind of care. Aetna hopes to sign up between six and 12 large
companies
by next January, when it begins its pilot program. It already has
signed
up FMC Technologies Inc., a Houston manufacturing company with about
15,000
employees, dependents and retirees.
Aetna's move is the latest in a mounting effort by
hospices, the federal
government and insurers to ease the psychological and financial burdens
on dying patients. Some hospice programs -- which focus on treating
pain
and offering emotional support for the terminally ill -- are accepting
patients earlier in their diseases and offering additional treatments.
Programs also are opening their doors to a wider range of patients.
While
in the past hospices were almost solely used by elderly cancer
patients,
they are caring for patients dying of a host of illnesses, including
dementia
and lung diseases.
For its part, Medicare, the federal health-care
program for the elderly,
has relaxed its rules in recent years, making it easier for doctors to
refer patients to hospice.
While some of these efforts are embryonic, they
all seek to address
the biggest hurdle to using hospice: the requirement that patients give
up so-called curative treatments. To receive hospice care, patients
usually
have to sign a paper that states that they understand that they likely
have less than six months to live and that they are choosing to halt
curative
measures. With the new approach, the automatic trade-off between
choosing
to battle on or accepting hospice care isn't quite so stark.
Some hospices are accepting patients even before
they have stopped aggressive
treatment. Les Cramer, a 77-year-old former researcher from Fairfax,
Va.,
has been battling prostate cancer for 17 years. Last July, after many
rounds
of treatment, his PSA level (for prostate specific antigen), a marker
of
the virulence of the disease, skyrocketed. His doctor, Richard Binder,
started him on an experimental treatment, a round of chemotherapy with
the drug Taxotere, a drug more often used in breast cancer. At the same
time he enrolled Mr. Cramer in hospice. A hospice nurse visits him
weekly
and an aide comes to his house twice a week to help him bathe. A doctor
prescribes pain medication. The program also has sent over a hospital
bed
and wheelchair to make it easier for Mr. Cramer to move
around.
Even though the hospice isn't paying for the
chemotherapy, Mr. Cramer
traditionally would have had to wait until he completed treatment
before
being admitted. As part of its effort to reach more people, Capital
Hospice,
a program with about 600 patients in the Washington, D.C., area,
accepted
him right away. After suffering serious side effects, Mr. Cramer
recently
decided to discontinue the chemotherapy. He isn't ruling out future
treatments.
"I may yet go back to some kind of therapy if Dr. Binder recommends
it,"
Mr. Cramer says.
While part of the interest in hospice is the
growing realization that
it is often the most comfortable, dignified way for people to die,
there
is another force at play: Money. Such care can save insurers a lot of
dollars.
An average day in the hospital costs $7,353, according to the American
Hospital Association. By contrast, insurers pay hospice programs about
$120 a day per patient for most care.
The reward for choosing hospice is that patients
and their caregivers
receive a cornucopia of benefits. These include everything from house
calls
from doctors and nurses and visits from home-health aides to help with
bathing and housekeeping, spiritual support from chaplains and social
workers,
and massage and physical therapy.
In the past 10 years, the number of people
enrolled in hospice programs
more than tripled, surging to 885,000 in 2002 from 246,000 in 1992,
according
to the National Hospice and Palliative Care Organization, a nonprofit
in
Alexandria, Va.
Despite the expanded approach, doctors still don't
often refer patients
to hospice until they are near death. Almost 35 percent of hospice
patients
die within a week of their entry into a program. "It is just hard for
doctors
to tell their patients that they think they are going to die," says
Janet
Abrahm, an oncologist and associate professor of medicine at Harvard
Medical
School.
Aetna is seeking to address the reticence of
patients, their families
and doctors to choose hospice. It will allow patients to enter into
hospice
while simultaneously undergoing aggressive treatments that still aim to
cure the disease. Patients can continue to fight their illness, but
still
get the home nursing, spiritual counseling and other support services
that
hospice offers. Under Aetna's current program, patients have to choose
between hospice and aggressive treatment.
"Patients don't switch from hope for a cure to
hopeless and dying,"
says John W. Rowe, chairman and chief executive of the Hartford, Conn.,
insurer. "This is to offer more choice, offer them an
alternative."
The "curative" treatment would be paid for under
the patient's regular
Aetna medical benefit. So, for example, if a patient had a benefit that
paid 80 percent of medical costs, the curative treatment the patient
received
while in hospice also would be paid at that 80 percent rate. Many
hospice
services would be paid at 100 percent.
Aetna's new program allows doctors to refer
patients to hospice if they
have a life expectancy of a year instead of the current six months. The
program also will pay for bereavement counseling for the family and
so-called
respite care, additional help for exhausted caregivers. Kaiser
Permanente,
an Oakland, Calif., insurer, has offered a small pilot program similar
to Aetna's, for about 300 patients in Denver and Hawaii during the past
two years.
During the pilot phase of Aetna's program, which
will last about a year,
the insurer won't charge the companies for the new benefit. It is
unclear
how many of Aetna's 13 million members ultimately will receive the new
benefit, since it depends on how many of their employers are willing to
pay extra for it when they eventually do have to cover its
costs.
Besides Aetna and Kaiser Permanente, other private
insurers are becoming
slightly more flexible and are offering to cover certain more
aggressive
treatments. These aren't new policies. Instead, most extensions of care
happen on a patient-by-patient basis. This reflects the increasing
power
of the insurance company's case managers, usually nurses who coordinate
coverage and care of patients with chronic or expensive
illnesses.
Michael Chee, spokesman for Blue Cross of
California, says case managers
often can help patients get better coverage by accessing different
portions
of their benefits packages. For example, a patient could have
additional
days of nursing care at home by first maxing out on a separate
home-nursing
benefit before having to turn to hospice coverage. Cigna Corp., of
Philadelphia,
will allow patients to enroll in hospice but still covers some
expensive
medications and therapies under the patient's other benefits.
Even Medicare is lightening up a bit. It tinkered
with its rules in
2000 to expand access to care, making it easier for doctors to refer
patients
to the programs. Before the change, doctors had to be fairly certain a
patient would die within six months before they could refer the patient
to hospice. Now, the six-month time frame is more of a loose
estimate.
Joseph Dorn of Lexington, Ky., is one patient who
is benefiting from
a more flexible approach by hospices. He entered hospice last June,
after
being diagnosed with an aggressive form of leukemia. A bone-marrow
transplant,
the best option for a cure, wasn't really an option for the 84-year-old
Mr. Dorn, who was unlikely to benefit from the procedure.
Now, Mr. Dorn is getting weekly nursing visits at
home from Hospice
of the Bluegrass, a 700-patient program in Lexington, Ky. He also
continues
to receive blood transfusions that give him the energy to take the
walks
he enjoys and to help him care for his wife Amy, who has dementia.
While
the transfusions clearly are extending his life -- his nurse says he
would
likely have died months ago without them -- the hospice considers them
"palliative" and are paying for them. The reason is that they won't
cure
Mr. Dorn's cancer but are improving his quality of life.
Mr. Dorn is planning a trip to California to visit
a nephew he hasn't
seen in 15 years. And he is enjoying the little things close to home.
"If
we go out to eat and want a banana split that costs $5.95, we get it,"
he says.
--------------------------------------------------------------------------------
While hospice care may be the best choice for a
terminally ill loved
one, there are hurdles to getting good coverage. Here are some ways to
maximize coverage.
* Seek out a palliative-care program in the
hospital.
These programs focus on treating pain and
extending comfort, but patients
usually don't have to be certified as terminally ill and can continue
with
aggressive treatment. Palliative programs are offered at hospitals like
Mount Sinai Medical Center in New York and Massachusetts General
Hospital
in Boston and are usually covered under a patient's regular hospital
benefit.
Check the National Hospice and Palliative Care OrganizationWeb site
(www.nhpco.org)
for a list of programs.
* Choose a larger hospice program.
Larger programs such as Capital Hospice in the
Washington, D.C., area
and Hospice of the Bluegrass in Lexington, Ky., are more likely to
allow
patients to continue with aggressive treatments even after they enter
hospice.
Because they can spread their costs around more patients, they are
better
able to pay for expensive medications. Nhpco.org has a list of
programs.
* Know your policy.
Many private health-insurance policies have caps
on hospice coverage,
usually around $10,000. That will pay for about 85 days of hospice. But
check other areas of coverage that could help out: Many large insurers
such as Blue Cross of California offer a separate home-health
benefit.
* Lobby the case manager.
Insurance case managers have some latitude to
expand coverage, even
if it is outside the letter of the patient's policy. Case managers can
allow patients into hospice and still allow some aggressive treatments,
giving what is for many patients the best of both worlds.
©2004 Associated Press
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